NEW NEWS ABOUT CAROL


photo by Wayne Eastburn, the Register Guard

Carol has passed the 100 day mark from when she got her bone marrow transplant. Read all about it by clicking on:

PROGRESS


Carol has received her bone marrow transplant. She is out of the hospital and living in an apartment nearby. Her address is:

1701 SW Columbia, #304,
Portland OR 97201

e-mail:
cprovance10@yahoo.com.

To read her messages, and more news on her progress, click on:

CAROL'S EMAIL


 

THE CAROL FILE

 

Everybody--
Carol Provance has cancer. Has had
it for a long time. She's received
reports for a year or more now: The
latest cure worked, she's going to
be all right. No, it didn't work;
she needs further radiation. Up and
down. Hair falling or new hair growing.
Down and up. A teeter-totter of a ride.
Then this morning we hear she's down
again. Only 5% chance of surviving if
she doesn't get a bone marrow transplant
from some donor with matching DNA. I'll
put in further details when I know more.
For now I'll just give you a look at
Carol...
She's one of the most beautiful people
I have ever known-- great face; great
blond hair; and terrific legs. I got to
know her when we did TWISTER a few years
back. She was teaching Art at Springfield
High School but gladly gave it up to play
Glenda the Good Witch up and down the
coast and as far east as Boulder, Colorado.
She's as good as it gets, and she looks
terrific whether she's on chemo or off.

--Kesey


Transplant recipient slowly recuperates

By JEFF WRIGHT
The Register-Guard

It's Day 6 and counting for Carol Provance, the Eugene woman who received a bone marrow transplant on Friday in Portland and is now recuperating without benefit of an immune system.

Provance, battling an aggressive form of leukemia, said in a brief telephone interview Wednesday that she's feeling reasonably well - able to read, write and exercise a few minutes on a treadmill.

"I'm even eating green Jell-O," she said. "I didn't know people still ate that."

Provance, 46, is staying at Oregon Health Sciences University
in Portland. She can be reached at the hospital via e-mail at

cprovance10@yahoo.com.

Carol captured local attention earlier this year when several
hundred people lined up at blood drives in hopes of finding
a bone marrow match for her. When no match was found,
the former arts teacher explored such risky options as an
umbilical cord blood transplant or experimental drug therapy.

But in late February, Provance got the news she hoped to
hear: A match had been found through the National Marrow
Donor Program. It wasn't a perfect match - Provance and the
donor have five out of six of the same antigens - but her doctors say it's close enough to offer her about a 40 percent chance of survival.

Provance said the transplant was amazingly simple: Doctors hooked up a small bag of donor marrow, and Provance watched it drip into her body over the next 25 minutes.

"It was amazing thinking, `This little bag is saving my life,' " Provance said. "I sat there with chills looking at it."

But Provance now faces the riskiest time of all: Because her own bone marrow was killed off to make way for the donor's marrow, she has no immune system.

Within the next week or two, doctors hope to have a good idea as to
whether the donor's marrow has "taken." They also will be on the lookout for graft-vs.-host disease, in which a donor's marrow attacks a recipient's tissue.

If all goes as hoped, Provance could leave the hospital in late May.

Provance said she's feeling upbeat, despite not knowing what tomorrow will bring.

"I know it's a dangerous time but, so far, everything's fine," she said. "There's no other way to say it: I'm so happy."

To hear Carol Provance sing "Zymogenic Infestation," the hit song from TWISTER (along with George Walker, who plays the Tinman), click on:

zymogenic


Carol with Emily Messmer (who plays the Angel in Twister)
Dear Kens and Friends

I'm leaving tomorrow for Portland, they will do surgery early Tuesday morning for a new catheter then something called stem cell harvest for the rest of the week, sound a bit dehumanizing to be treated like a field to be harvested. I will be back on Friday or Saturday and will plan on coming out before I go in on April 6th.

I wish I could say I regret nothing I've ever done but that would be untrue. I can say all seems to have led me to a place I am quite happy with and that would mostly be the friendships formed and among the most cherished would be the ones since I jumped on the bus.

Thanks for the wonderful words.

Love, Carol


NEW NEWS ABOUT CAROL

Woman to get transplant

By JEFF WRIGHT
The Register-Guard

 

Carol Provance has her date with destiny: April 13.

That's the day the 46-year-old Eugene woman, battling an aggressive form of leukemia, will receive the bone marrow transplant that represents her best and perhaps last chance for survival.Several hundred people lined up at blood drives earlier this year in hopes of finding a bone marrow match for Provance. When no match was found, the former arts teacher explored such risky options as an umbilical cord blood transplant or experimental drug therapy.

But in late February, Provance got the news she hoped to
hear: A match had been found through the National Marrow
Donor Program. It's not a perfect match - Provance and the
donor have five of six of the same antigens - but her doctors
say it's close enough to offer her about a 40 percent chance
of survival.

The donor - a man in his 40s who lives on the East Coast -
still had to pass a medical exam and agree to go forward
with the transplant. On Monday, Provance learned that the
donor agreed to donate his bone marrow on April 12 - with
the transplant to be done the next day at Oregon Health Sciences University in Portland.

"I'm relieved, very relieved," Carol said.

She will be admitted to OHSU on April 6 to begin extensive
chemotherapy and radiation intended to kill off her own bone marrow so she can receive the donor's marrow.

She also must go into the hospital for four days next week to have her marrow's T-cells removed - to be saved and returned to her system should the transplant not succeed.

Carol said she plans to write a letter soon to her donor, even though
she's not allowed to disclose her name or where she lives.

"I would like him to know what's happened here with the (blood) drives," she said. "I'd like him to know he's come through not just for me but for a whole community of people."

Carol Provance can be contacted by e-mail at

leecharlee@cs.com.


Our Friend, Carol Provance, who has Leukemia and needs a bone marrow transplant has had some good news. A donor has been found. Not a perfect match but close enough they are going to give it a try. The donor lives on the East Coast and they will have to remove some marrow and send it to Portland where it will be given to Carol.
-- Ken Babbs

Read the complete story in the Eugene OR Register Guard. Click on:

CAROL STORY


Ken, Ken and Phil,

By now you know of the near-Miracle of a new donor showing up for Carol with two outs and two strikes against her in the bottom of the ninth......after over 6 million non-matches. She had given herself two more days to make a decision between two or three very risky options. There is still considerable risk ---her doctors now give her a healthy 40% chance---but I think anyone who knows Carol and the way she's fought this thing knows for sure she's going to win.

One week before either March 28 or 29, or April 4, Carol will go up to the OHSU hospital in Portland to start radiation and/or chemotherapy to get her ready to undergo the transplant. On one of those three dates the actual transplant will occur, with the bag of marrow being flown out from an east coast hospital in Philadelphia hours prior. She will then need to remain isolated in a small air-sealed room for about 4 weeks.

After that Carol will go to a lodging outside, but near to, the hospital for 3 to 4 months. Someone will have to be with her 24 hrs to make sure she does not fall so ill she can't help herself.

Therefore: Carol is looking for a compatible lodging for herself and a companion. (Her good friend Scott is working out a schedule so her friends can make sure she's covered.) She would need the place from approx. April 1 till approx. July 1 to August 1. She is prepared to pay a reasonable amount of rent. The place needs to be furnished and be within 20 minutes of the OHSU hospital (on Terwilliger (?) near the Veterans Hospital, 5 to 10 minutes from downtown). If anyone can help with this it would be much appreciated.

Since Carol is unable to work, and has been for some time, the financial aspects of all this are very tough. Because of that we've established a fund to help Carol cover whatever amount of medical and medical-related expenses (such as this travel) we can. Anyone who would like to contribute something can do so at:


The Carol Provance Leukemia Fund
Selco Credit Union
P O Box 7487
Eugene, OR 97401

or at any Selco Branch using the above fund name.

Thanks on behalf of all Carol's friends to those who have previously been so generous. It's kind of taken my own opinion of humanity up a notch.

Irby


Eugene Oregon's daily paper, the Register-Guard, has been doing articles about Carol Provance and her battle against Leukemia. For the latest one, click on:

Register-Guard


Photo by Chris Pietsch/ The Regster-Guard

Ken, Ken & Phil,

The blood test drive for Carol went extremely well. Thanks for carrying the information on the web site and for helping get the article in the Register Guard. We were hoping we would get 20 to 30 people and we ended up with about 250 beautiful souls who not only took the time to come (some from as far as 150 miles away) but willingly paid the 100 dollar fee and, in many cases, paid for others who couldn't swing it but wanted to help. Chuck, Sue and family not only came and stood in line, but the Creamery sponsored quite a few others. Carol's friend Debbie Cullen put a lot of work into organizing the event and it went very smoothly and was a joyous thing to see and be a part of. The sense of community and of love among people of all ages, who were mostly strangers to each other, was enormously satisfying. It made me realize we live in a place that still has a beautiful heart.

Carol was there and greeted every single person, and I know she'll be able to feed off what she got from them through some of the rough times she'll inevitably face.

Thanks again. More later.
Irby


For those who didn't make the testing scene last Friday there is another one happening:

Saturday and Sunday, February 17 & 18, 10 AM to 4 PM
Asian Celebration 2001, Lane County Fairgrounds
Asian, African, Latin, Native American or Pacific Islanders get their blood tested and put on the national registry for free.
Nonminorities cost $21 and if you can't drum up the cash, Irby Smith will help out. Call him at
747-1872 or email him at
irby@pond.net

-- Ken Babbs


ALSO: From anywhere in the U.S. testing kits may be ordered on the web at www.BoneMarrowTest.com. When you receive the kit you can have your blood drawn at any clinic or doctor's office and send it back in the enclosed mailer. When ordering the kit request "AB serology" and indicate on the paperwork that the test is for Carol Provance and that a copy of the test should go to her doctors as follows:
Florence Seelig
Adult Bone Marrow Transplant Program
OHSU
3181 SW Sam Jackson Park Rd.
Portland, OR 97201-3098
clinic ph. no. 503-494-5058
e-mail: seeligf@ohsu.edu

WORLDWIDE: The above-mentioned kits can be ordered from anywhere in the world by calling 1-937-294-0973 between 8:30 am and 5:00 pm U.S. Eastern Standard Time. We would especially encourage anyone from Sweden or of Swedish descent to participate as Carol is of Swedish background.

There are bone marrow testing centers in most U.S. states and in many countries worldwide that participate in the International Bone Marrow Registry. Anyone can go into their branches and be tested and have the results sent to Carol's doctors. We can offer assistance in getting this done. Contact us through this website or e-mail irby@pond.net. National and international donor centers are listed at www.bmdw.org/Addresses/AllRegistries.html.

There is further information regarding the specifics of bone marrow donation at www.marrow.org.

We are asking each person who reads this, whether they are able to
participate or not, to send all the good energy they can spare to Carol every day.

Irby




And now, if you would like to see a funky quicktime movie clip of part of the same song, click on:

zymo.mov

From: FrankLavelle@aol.com

on the evening news jan 2 here in sw fla a small mention of an experimental drug called STI571 supposed to be useful even in later stages of leukemia it is not FDA approved hope this helps.....frank lavelle

____________________________________________________________

From: Andrew Weil

Dear P, K, and K-

Can you tell me what kind of leukemia?

Is she on Paul Stamets's mushrooms -- like MycoSoft? That would help.

Andy

_______________________________________________________

Dear Andy,

I don't know if Kesey or Babbs got back to you on this? Carol has Acute Myelogenous lukemia. She is not taking Mycosoft at this time. Some concern on her part over bacterial infections?

Phil, Ken and Ken

___________________________________________________________

No need to be concerned about bacterial infection from MycoSoft -- I'd use it. If the chemo does not do the trick, there's probably not much else available.

Andy

____________________________________________________________

From: Rado3260@aol.com

Dear Intrepid Trips,
Read your notice about Carol and have some info that may help. First, check out Alternative Medicine Magazine Issue 37 September 2000 (www.alternativemedicine.com) "Too Hot for Cancer - Hyperthermia and Electrotherapy: Friedrich Douwes, M.D., in Germany has great success using far infrared radiation and direct electrical current as mainstays of his cancer-killing strategy. These can be used as a non-toxic alternative protocol or, in combination with traditional chemotherapy, can allow the dosage to be reduced by 80%." Contacts included with article : Dr. Friedrich
Douwes, Klinik St. Georg. Mailing address: Rosenheimer Str. 6-8, 83043 Bad Aibling, Germany. Tel: 011-49-8061-398-412; e-mail: Prantseck@t-online.de; Web: www.klinik-st-georg.de and.....
European Society for Hyperthermic Oncology (ESHO):
www.cv.ruu.nl/radiotherapy/esho Their work sounds very promising and compassionate.
Also, don't forget our FRIENDS in nature. The Australian Bush Flower Essence Society has collected some incredible data about use of flower essences for cancer. Their website is www.aus.flowers.com.au I have worked extensively with the Bush Flower Essences and have found them to be very powerful and offer my expertise to Carol if she would like. 610-469-0982.

-Aquila

_____________________________________________________

From: Rado3260@aol.com

Hi, In addition to info in my last e-mail, have found this phone number and e-mail address for Australian Bush Flower Essences. International phone: 61-2 9450 1388 e-mail: info@ausflowers.com.au
I understand that the practitioners there perform phone consultations. As far as I know, the Bush Essences are the only ones around where the connections between the different essences and disease processes have been documented and made available to the general public. Check out Australian Bush Flower Essence Healing by Ian White published by Bantam Health/New Age.

Peace, Aquila